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Another dietary change for me!

SatinSky

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So, now that I've been gluten free for several months, it is time to eat gluten again! I went to Vanderbilt University today and met with the team that will be taking care of me at the IBD Center. The GI will be doing another colonosopy with an endoscopy right before Thanksgiving, she needs to see if the gluten has an effect on me so I have to eat it again. I'm munching on REAL pretzels right now! The kind that cost $2 for a big bag, not $4 for a tiny bag. They're stale and delicious to me! They also told me to try Lactaid milk or a low or no lactose cheese. She suspects I am severely lactose intolerant but that dairy protein itself is not an issue for me.

 

The psychologist was a trip but he did cheer me up! He thinks I need to stop worrying about what might happen if I get sick again and just enjoy the moment when I'm not in pain. He also told me that he grew up with a Jewish mother and he knows that it is sort of natural for us to worry, so I should do my best. Haha!!!! He was really nice and told me that if I need anything please feel free to call and make an appointment with just him to talk, I don't only need to see him when I go to see the GI.

 

The nutritionist was amazing and very patient. She was impressed when I came in with my list of foods that I can eat. She confirmed that I should try lactose free milk, so I'm going to pick up some in a few minutes because I only have one more serving of the almond milk anyway. She was very specific about how much and what kin ds of gluten to try. I can still only have white versions of things. She also told me to limit myself to 13 grams of fiber or less a day, which sounds difficult but when you can only eat one half cup of cooked veggies a day or you have pain it is pretty easy.

 

So, now I just need to hope I don't get too sick after adding back in the gluten. I had a white slider bun (the only glutenous white bread we had in the house when I got home) and now a few pretzels. I'm about to make myself move again and go to the store. I'm pretty exhausted from a long day... but I should go pick up the supplements she said to get. I am supposed to start taking Flinstones vitamins, haha! Specifically Flinstones Complete, I hope there is a store brand!

 

Just thought I would share what was going on. I'm hopeful this is going to help me on the path to remission. They asked me if I was coming just for a second opinion or to be treated. Originally I thought I would go just for the second opinion but I'm not sure now. I really clicked with all of the doctors and having a full team helping me feel good seems like a really great idea right now.

 

I do need to call them in the morning though, I realized after I left that they never took my copay! Yikes!

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So far it has done exactly opposite of what I expected.  But that is ok, I will see how the days play out.  Hoping to either be told I an continue to eat gluten because it isn't doing anything to me or that I have celia and get an answer.

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Hope you get the answers to what is causing your pain and health issues. sounds like you found a good team of doctors and other health care providers.

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Thanks!  I was quite happy to have a big bowl of pasta with shrimp, mushrooms, olive oil and parmesan cheese just now.  Accoring to the nutritionist I should be able to have parmesan because it is virtually lactose free and since you use so little of it there is little effect.  so far no issues... I'm pretty excited to get some yummy food in me!

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I hope you feel better soon!  As for the vitamins, yes there are generic Flintstones Complete vitamins at Target and Walmart so I'm sure most larger pharmacies would have them too.  My boys take the Flintstones Immunity Support vitamins (one of my boys gets sick often which we just found out is due to allergies to most things with fur) but I haven't found a generic for those.

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I grabbed a package of Flinstones Complete at Publix and it was $7 for two months worth. Not too bad! My stomach hurt today... I think I will be less excited about gluten and much more careful from now until the test.

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For lactose free cheese, have you looked into goat or sheep cheese?  I know those have much less lactose than cow, but I'm not sure if it's low enough for your needs.

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Another thought, basic cheeses aren't that hard to make, you could make your own from the Lactaid.  I'd bet You-tube has directions on a simple bag cheese.  Though those tend to be mild like mozzarella.

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I tried making mozzarella once, it was not super successful. Haha! I already had a fairly new bag each of vegan cheddar and mozzarella, some goat cheese and sheep's feta when they said to try adding in lactose free dairy. I will just use that up first. I just really miss cheese, I wasn't really missing gluten.

 

I had a shake for dinner made with Lactaid just now. It was so much creamier than the almond milk makes it! Delicious!

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