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Gluten free... Again...

SatinSky

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The new medicine I fought so hard for isn't helping me yet. My doctor tested me, yet again, for c diff, they are checking for a vitamin B12 deficiency and checking for signs my pancreas isn't processing stool.

 

In the meantime, he is worried I may have developed celiac. I've been negative for it before but as my mother has it and I haven't had an endoscopy in a few years it is possible. So, he doesn't want to do another test on me right now and he said I should just try going gluten free.

 

I have to say, I am confident in my ability to be gluten free on a budget... Or I would be if I could focus on fresh, naturally gluten free food. But, my diet is very limited.

 

What I know I can eat is all forms of protein, rice, potatoes, nut butters, avocado, olives (I think at least), banana and almond milk. I bought myself some Chex cereal to go with my vanilla almond milk. Sigh...

 

Any meal ideas? I'm having chicken and white rice tonight. Had tuna with avocado on rice cakes for lunch. My mayonnaise has gluten in it apparently. I also had some GF chicken nuggets that my boss had leftover when she thought gluten was causing her migraines. She said I should eat them.



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So sorry you are having such a rough time with your health lately. I hope you can figure this all out soon and start feeling better.

 

I am not only gluten free, but I go a step further and am completely grain free. I have tons of meals and recipes I could share. I try to keep most of my meals very simple, just protein, veggies and healthy fats. I also eat cheese and nuts. I make all my own salad dressings, mayo and sauces. When you start reading labels you will see wheat or some form of it is in almost everything on the grocery store shelves.

 

Mayo is super simple to make. 1 large egg, 1 cup extra light olive oil, 2-3 tsp vinegar(I use Apple cider), a dash salt. You can use a blender or a mixer, I use an immersion blender and it whips up in seconds. I use it as just mayo, to make ranch dressing and add to recipes.

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The thing is that right now I can't eat fruits and veggies, cheese or nuts. It's going to be boring food for me for awhile! Hoping we can get my stomach settled enough to reintroduce some foods to my diet eventually.

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SatinSky, have you thought about doing something like GAPS or the Autoimmune Paleo protocol to try to heal yourself?

 

Some homemade broths and soups might be soothing and easier to digest.

 

I don't eat gluten, and like coingirl, I make most of my own foods. My mayo recipe is similar, but I like 1 whole egg and 1 egg yolk, plus a squeeze of lemon and a bit of mustard with the vinegar. I use food processor and drizzle the oil into the little hole in the feeder tube.

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Why don't you go to a nutrionist. It would seem based upon the limited items the doctor is allowing you can have meat, fish, eggs, milk based products except cheese, rice, potatoes that you diet will need to be supplemented in some way because of the lack of vitamins and nutrients derived from fruits and veggies. It also seems odd that you are having almond milk and nut butters when you are not allowed to have nuts - a little inconsistent.

this is why you a real program by a specialist is best.

 

You should see a nutrionist with the list of restrictions and tell her that you need a menu plan based upon a limited budget.

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Have you heard of the FODMAP elimination diet? Google it and talk to your Dr about it, it's used a lot for gut issues, irritable bowel, etc. My teen's gastroenterologist put her on that in January. In the beginning it's VERY limited, she did that for a few weeks, then added back in one group of foods at a time. It has made a world of difference for her, she had gut pain since kindergarten, and she's been pain-free for 6 months now. Her "trigger" foods are gluten & lactose so she'll remain off those, but that seems easy compared to the beginning weeks of the FODMAP diet when it seemed like everything was off limits.

 

For meal ideas, lots of chicken, potatoes, veg type meals. Lots of (homemade) Chinese style meals since rice is OK. You can get gf soy sauce or use liquid aminos instead. Lots of (homemade) Mexican style meals using corn tortillas. Tacos/tostadas/enchiladas/taco salads. Make your own taco seasoning. 

 

Good luck, I hope you find something that helps you.

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I don't know why I said cheese, I'm off all dairy. I have a friend who is a dietician who is going to help me. She is out of town so I'm keeping a food and drink journal along with a pain scale journal. She will see if anything else seems to also be a trigger and try to help me plan out a better way of doing this.

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It's worth it though, I need to get healed.

 

No signs of my pancreas not working properly and no c diff. My B12 was normal so the vitamins are working. The doctor said to keep going with gluten free and check in with him next week.

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So sorry but I am no t surprised. When you have one auto immune, you are bound to have another.

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Noooooooooooooooooooooooooooooooooooooooooooooooooooo!

 

If you think you have celiac you must do the tests prior to going gluten free. It won't show up if you go gluten free and celiacs need certain things done (dexa scan, certain vacs, etc) that won't be done if you aren't celiac.

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He will do the test with another colonoscopy in a few months.  If going gluten free doesn't help me at all then he won't put me through an endoscopy most likely.  I will eat gluten again before the testing but for now, I just can't have another procedure.  I just had a colonoscopy two months ago, my body needs a break.  :/

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My mom has celiac, I do know about the things that need to be done if I really do have it.  However, this is a shot in the dark so we are testing it out before we go through the actual physical testing.  I've been tested for celiac before (blood test and endoscopy) and it was negative so it's just an idea to see if that will help me.  Some people with UC become gluten intolerant but don't have celiac.

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