It seems like we have lost control of our lives these days. Instead of play dates and after school snacks my life has turned into Dr's appointments, therapy appointments, appointments with lawyers, medical social workers, school social workers, EFMP appointments, etc. In the next 2 weeks we have multiple appointments per day.
No one tells you how hard this is. Don't get me wrong I love the little guy beyond words. He is making amazing strides forward. In September he was 100% non-verbal. Now he has about 15-20 words and signs. The work is paying off but he takes 100% constant supervision and input. When you add that to all the time spent on the phone making appointments and such......well I am worn out.
Financially speaking......well....again no one tells you how expensive this is either. His therapy tools cost $10-15 per day. More if he is having a bad day/week. This month he also needed 2 new therapy tools for a total of another $150 on top of the daily costs. Plus all the extra gas for going to appointments that are all 30-40 min away.
We are also taking his diet "clean" so we are cutting out all the *stuff* from his diet. So there is THAT as well.
My life in the last 4 mths has gone in a completely new and slightly terrifying direction. I don't know what I am doing and everyday is something new. He now has a tremor in his hands. So now we get to start all the appointments with that specialist. There are days when he stumps even the professionals.
Okay I have used all my free time and he needs me. Thanks for listening to me whine